International Spring School

International Spring School 

15th March – 17th March 2020, digital on Zoom

The international spring school “Own Data. Systems Medicine between Sovereignty and Solidarity“ seeks to scrutinze the challenges of data ownership in systems medicine. The aim is to gain a more precise understanding of a possible right to own data and its impact in regard to the specific relevance of data in clinical settings. You can view the Schedule of the Spring School here.

Monday, 15th March

13.30 – 14.00 Welcome, Opening and organisational information
Matthias Braun
14.00 – 14.40 Presentation and Discussion
Conceptual and Practical Challenges in Dealing with Data Ownership
Matthias Braun
14.40 – 15.20 Presentation and Discussion
Stewarding Children’s Data: Striking a balance between sovereignty and solidarity
Jenny Krutzinna
15.20 – 15.40 Break / Sport Session
15.40 – 16.40 Keynote Lecture
Data protection, data governance, and data sovereignty – differences and commonalities in varying approaches to regulating health data
Steffen Augsberg
16.40 – 17.00 Break / Sport Session
17.00 – 17.40 Presentation and Discussion
Data as contractual consideration
Anne Wierling & Wulf Loh
17.40 – 18.20 Presentation and Discussion
How to give sovereign consent? Data sovereignty and consent models for AI-driven data processing in the health context
Hannah Bleher

Tuesday, 16th March

13.30 – 14.10 Presentation and Discussion
“It’s not something you can take in your hands”. Swiss stakeholders’ perspectives on health data ownership
Andrea Martani
14.10 – 14.50 Presentation and Discussion
Applying Differential Privacy to Machine Learning on Sensitive Medical Data
Franziska Boenisch
14.50 – 15.30 Presentation and Discussion
Epistemologies of Asymmetry: Challenges to institutionalized solidarity from big data in systems medicine
Darian Meacham
15.30 – 15.45 Break / Sport Session
15.45 – 16.45 Keynote Lecture and Discussion
Political and Societal Views on Data Ownership
Barbara Prainsack
16.45 – 17.00 Break / Sport Session
17.00 – 17.40 Presentation and Discussion
Collaborative Decision-Making in Health-Related Data Sharing: a Comparative Analysis
Ilaria Galasso
17.40 – 18.20 Presentation and Discussion
Using subjective identities to think about medical and genomics research and practice – where do autonomy and communitarianism stand?
Mavis Machirori

Wesnesday, 17th March

13.30 – 14.10 Presentation and Discussion
Open data: governance, ethics, and trust – findings from an evaluation of the ODI’s Research and Development Programme
Francesco Tava
14.10 – 14.50 Presentation and Discussion
On digital twins and heavenly doppelgangers
Yannick Schlote
14.50 – 15.10 Break / Sport Session
15.10 – 15.50 Presentation and Discussion
On Contact Tracing Apps, Data, and Sovereignty
Max Tretter
15.50 – 16.30 Presentation and Discussion
A Duty to Share?
Patrik Hummel
16.30 – 16:50 Break / Sport Session
16.50 – 17.45 Closing Remarks and Discussion
Bringing the Conceptual Challenges back to the Clinic: What do we have learned so far?